Welcome to the website of the Greater Boston Post-Polio Association! Rather than inundate you with a library of thousands of documents, we take a more selective approach to make it easy for you to find the most important and useful resources available. Many of the items here, such as our member-written articles, Positive Personal Solutions column and resource list originate with the GBPPA and will be found in few other places. We will be continuously adding to this site, so we hope that you'll visit often, and that you will find information here that will make coping with post-polio syndrome a little easier.
Please read our [disclaimer].
|Date:||Sunday, November 17, 2013|
|Time:||1:00PM to 2:00PM socializing
2:00PM to 4:00PM program
|Please note different time and day of week from previous meetings!|
|Place:||United Parish Church of Auburndale
64 Hancock St., Auburndale (Newton) Mass.
|Program:||The documentary film “Lives Worth Living” which relates the struggle to pass the ADA (Americans with Disabilities Act), will be shown starting at 2 PM. Refreshments will be served.|
The GBPPA Metro West support group will meet from 2:00 to 3:30 on the following date:
Wednesday, November 13, 2013
Post-polio syndrome, often called post-polio sequelae or the late effects of polio, is a condition which affects a growing number of individuals who contracted polio 30 or more years ago. Most polio patients recovered, at least partially, held responsible jobs and functioned reasonably well for years. Many now find themselves physically unable to maintain the active lifestyle they had struggled so hard to achieve. Post-polio syndrome is characterized by the following symptoms:
Because of the virtual eradication of polio in the United States in the late 1950s, most members of the medical community and the general public fail to recognize such symptoms as relating in some manner to the original disease. Although medical researchers studying post-polio syndrome have uncovered some facts about the condition, no effective medical treatments have been found. Lifestyle changes, pacing and the use of adaptive equipment are the most effective way to minimize the effects of PPS.
The Fred C. Pearson Memorial Fund, named in honor of a creative and generous man who made tremendous contributions to the GBPPA in many areas during his lifetime, was established to assist members of the Association of at least six months standing who are now encountering the effects of post-polio syndrome to purchase assistive equipment, including but not limited to walking aids (such as canes, walkers and special shoes), automotive or wheelchair accessories and tub or shower safety equipment (such as grab bars or special seats). It is also the intent to provide grants for unreimbursed services by a qualified healthcare provider such as initial diagnostic testing relating to post-polio syndrome or review of rehabilitation issues including evaluations of the home environment. The maximum grant is $600 and shall be not less than 25% of the total cost of the assistive equipment or services for which the grant is made.
The following criteria apply:
The Association encourages members who feel that they might qualify to request an application by calling the voicemail line.