Links

Entering the keyword "post-polio" into any of the major web search engines will turn up more than 18,000 hits. The somewhat more selective list of links given here is intended to guide you to the most informative and useful PPS websites worldwide, as well as sites of local interest.

The Post-Polio Health International includes the former International Polio Network and the International Ventilator Users Group. PHI is an education, networking and advocacy organization. They can also help you find a support group in your area.

Massachusetts residents outside of our Boston area may be interested in the website of the Springfield and Amherst, MA support groups.

The website of the New Hampshire Network Post-Polio Support Group contains notices of their activities, on-line newsletters and much more useful information.

The Lincolnshire Post-Polio Network has an enormous on-line library of post-polio-related documents.

An extensive list of PPS-related links can be found at the aptly-named Post-Polio Syndrome Central. An interesting article on that site is Why PPS Is So Hard To Understand.

A long article on breathing problems by Edward Oppenheimer, MD, Associate Clinical Professor of Medicine at UCLA, may answer your questions on that subject. Another good source of respiratory information is Dr. John R. Bach's articles on DoctorBach.com.

The well-known work of Richard Bruno, PhD and Nancy Frick, M.Div, can be found in the pages of the Post-Polio Institute at Englewood Hospital and Medical Center and at the Harvest Center.

The Polio Survivors Association has a useful website, including an "It Works"page of useful devices you can make.

The website of New Mobility Magazine contains their monthly PPS Forum and full-text PPS article archive.

The website for Bonnie Hatfield's exhaustive PPS Bibliography has disappeared. Her mailing address when the site was still operating was
2 Coral Way
Half Moon Bay
CA USA 94019-2300.

Ernie Wollering's extensive list of Internet PPS Resources is, somewhat confusingly, located on the website of polio survivor Eric Eales and Cate Burton. Ernie also has a list of Recently Published Medical Articles on his own site, along with a Review Article Subset of that page.

Here is a list of books on polio with links to Amazon.com. An even more extensive list is at Barnes & Noble's own site.

There are two apparently independent PPS discussion groups on Yahoo, probably as a result of their acquisition of egroups.com. These are postpolio and Post_Polio_Syndrome. You may need to be a Yahoo member (free) to view the messages in these groups, and you will have to join the group (also free) to post to it, or to get access to some files. Please note that, although membership is free, Yahoo does apparently sell member lists and email addresses to advertisers who may fill your e-mailbox with unwelcome advertising ("spam"). You may find it difficult or impossible to stop such mailings once they have started.

The National Library of Medicine is an enormous database of medical information. Their Medline service has a page specifically on polio and post-polio syndrome.

This U.S. government site has information on Social Security & SSDI.

A fine two-part article for nurses (or doctors) on providing excellent care to patients with PPS is at Nurseweek. Part 1. Part 2.

Disabled Dealer is an online and print classifed ad site for buying and selling new and used adaptive equipment, services and resources including vans, scooters, wheelchairs and homes.

If you're going to Ireland, or just want a European slant on PPS, visit the site of the Post Polio Support Group (Ireland).